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Thu Apr 30, 2015 at 05:47 PM PDT

KosAbility: May Update

by postmodernista

May 3 - Besame will be discussing her experience with at least one app used to track chronic illnesses
Also, May is NEID - neuro-endocrine-immune disorders/diseases awareness month. NEID includes CFS/ME/SEID, MS, Lyme, fibromyalgia, MCS, Gulf War illness and others, so discussion of those conditions are welcome as well

May 10
 Chronic Headaches and Botox - Kathy in ga

May 17
 Good Genes and a French Irish Temperament - drudau
We do not need to identify ourselves by the trauma we have experienced.

May 24
 Pain 101 - studentofearth

Discuss

April 26
Modifications to Home and Work Settings - studentofearth

May 3 - Collaborative open thread, Besame and others
May is NEID - neuro-endocrine-immune disorders/diseases awareness month. NEID include CFS/ME/SEID, MS, Lyme, fibromyalgia, MCS, Gulf War illness and others

May 10
Chronic Headaches and Botox - Kathy in ga

May 17
Good Genes and a French Irish Temperament - drudau
We do not need to identify ourselves by the trauma we have experienced.

May 24
Pain 101 - studentofearth

Discuss

APRIL is U.S. Sexual Assault Awareness Month (see also Panayiota Bertzikis's March 29 diary, the DK House of LIGHTS group, last April's 30+ links to professional articles on sexual assault, bullying, & gender-based violence that also link to more recent articles) and National Child Abuse Prevention Month (including prevention of sibling abuse which may be mistaken as peer- or parentally-inflicted; see also last year's professional articles on longterm & immediate effects of violence, abuse & neglect of children that link to more recent articles), and International Parkinson's Disease Awareness Month (see also diaries tagged Parkinson's Disease & parkinsons disease) and Autism Awareness Month (find KoSpectrum & Parenting on the Autism Spectrum here).

May is AWARENESS MONTH for Celiac Disease  ■ StrokeCystic FibrosisBrain TumorMental Health (see also the DK Mental Health Awareness group) ■ Skin CancerHepatitisOsteoporosis and Lyme Disease (see also DK Lyme Awareness group) ■

May 12 is is International Awareness Day for Chronic Immunological and Neurological Diseases (CIND), such as NeurofibromatosisSEID - Systemic Exertion Intolerance Disease (a.k.a. Chronic Fatigue Syndrome, Chronic Fatigue Immune Dysfunction Syndrome, myalgic encephalomyelitis (ME), post-viral fatigue syndrome (PVFS) ■ FibromyalgiaGulf War Illness/Gulf War Syndrome ■ Multiple Chemical Sensitivity / Multiple Drug/Chemical Hypersensitivity (some references related to genetic basis in The Adverse Drug Effects Discussion in the Medical Communty and in Gender in Pharmacokinetics...& other Women's Health Topics) ■

April 19 - "Psychosomatic Disorders Are Real" - the psychosomatic label used to mean "it's all in your mind/imagination" - now we know better  by NancyWH, R.N.
"In Part 1, we look at the Mind-Body Connection.  Adrenaline and cortisol are important and helpful parts of the body’s response to stress.  However, it’s important that the body’s relaxation response be activated so the body’s functions can return to normal following a stressful event. Chronic stress disrupts the ability to return to a more relaxed state, and can have adverse effect on health.

In Part 2, we look at the Brain-Gut connection.  A "gut feeling" is not just a cliche. Psychology combines with physical factors to cause pain and other bowel symptoms. That doesn’t mean, however, that functional gastrointestinal illnesses are imagined or “all in your head.” Psychosocial factors influence the actual physiology of the gut,  or make you more susceptible to infection."

April 26 - working title "Modifications to Your Home and Work Settings " by studentofearth

May 3 - OPEN THREAD NIGHT & POTLUCK - NEID Awareness - Neuro-Endocrine-Immune Disorders/Diseases include: CFS/CFIDS/ME/SEID (chronic fatigue syndrome/chronic fatigue immune dysfunction syndrome/myalgic encephalitis/systemic exertion intolerance disorder), MS (Multiple Sclerosis), Lyme Disease/Borreliosis, Fibromyalgia, MCS (Multiple Chemical Sensitivity), Gulf War Illness/syndrome and others.

May 10 - working title "Chronic Headaches and Botox" by Kathy in ga

May 17 . . . . . . . . . your diary here, too!contact postmodernista

May 24 . . . . . . . . . and here!contact postmod

May 31 . . . . . . . . . and even here!contact postmod

We MEET Sundays 4pm leftkost time, 7pm east. UPCOMING SCHEDULES post between Wednesday & Friday weekly. See our recent & past diaries HERE. See our logobox below for more about Sun- days. Click on FOLLOW at the top of our page to receive our posts in your stream.  KosAbility diaries can be 1 paragraph, 2, or 20 — on whatever health-medical or related [even distantly related ;-) ] concerns that you our members & friends have in mind to talk and write about: post comments or contact postmodernista if you're interested in contributing a diary.

a block of nine abstract depictions of disabilities
KosAbility is a Sunday volunteer diarist com- munity of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. By disability we mean temporary and permanent health/medical conditions — from small, gnawing problems to major, life-threatening ones. Our use of love someone extends to cherished members of other species. Our discussions are open threads in the context of this community. Feel free to comment on diary topics, ask questions, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered.
Discuss

Howdy, y'all! As usual, our 1st Sunday of the month is casual and silly conversation, chitchat, and generally unserious stuff. Lurkers might want to de-lurk, say hi, and allow us to greet them. We might even clarify how cool it is to be a member of the preeminent disabilities group at the Great Orange Satan... who knows?

Our nominal topic for the evening is something that's been driving me batty over the past couple of months, and I'm fairly certain that I can't be the only one: annoying overuse/misuse of certain words. For me, the current word is 'amazing'. Come on down for my small rant about this, and share one of your own if you so desire.

a block of nine abstract depictions of disabilities
KosAbility is a Sunday 4PM leftkost/7PM east volunteer diarist community of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of disability includes temporary as well as permanent health/medical conditions — from small, gnawing problems to major, life- threatening ones. Our use of love someone extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or to everyone generally, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you're interested in contributing a diary, contact series coordinator postmodernista.

Continue Reading

A glitch has apparently happened, and until we can figure out what and how to fix it, here's a replacement, and also where any updates will appear. Good evening y'all- how are things with you?

Discuss

Hey there, y'all- good evening, and welcome to our monthly 1st Sunday free-for-all, wherein we yap, joke, 'meet and greet', and just generally try to enjoy ourselves and not be serious- there are plenty of other Sundays for that, right? Come on down and join us below the fold.

a block of nine abstract depictions of disabilities
KosAbility is a Sunday 4pm leftkost/7 pm east volunteer diarist community of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of disability includes temporary as well as permanent health/medical conditions - from small, gnawing problems to major, life- threatening ones. Our use of "love someone" extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or generally to everyone, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you are interested in contributing a diary, contact series coordinator postmodernista.

Continue Reading

Technical website issues required Steven Park's diary NEVER AGAIN: COMING TO GRIPS WITH LIFE AFTER STROKE - YEAR 1 ...AND 23 to be first published under the name of KosAbility's senior admin, postmodernista. As a result, comments are here below, and the diary has been republished under the author's name at this link..

a block of nine abstract depictions of disabilities
KosAbility is a Sunday 7 pm eastkost/4 pm leftkost volunteer diarist community of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of "disability" includes temporary as well as permanent health/medical conditions, and small, gnawing problems as well as major, life-threatening ones. Our use of "love someone" extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or generally to everyone, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you are interested in contributing a diary, contact series coordinator postmodernista.

Discuss

Postmodernista's computer is still in the shop, alas. She'll do her best to host & comment by phone. [ I think that's what she said. I don't have a celfone far less a smartfone so I'm nonconversant ;-) ]

Meanwhile, mettle fatigue is filling in. So, as pretty much all news-watchers/listeners/readers know, this is one of the years the flu shots have not been optimal ...for a number of reasons... so some of us who got ourselfs innoc'd are getting the flu anyway, not to mention a lot of everyone else. What to do, what to do? Well, push fluids, for one thing (it gives the guaifenesin and decongestants something to work with and keeps the antihistamines from drying out the mucosa which is IMPORTANT because dry mucosa is more invade-able by microbes!!!!)...

Let's get virtually together (safe from mutual contagion) below the logobox with Postmod's beautiful artwork, to swap flu-food tried-&-trues, any other food ideas manageable even when feeling awful, and by all means post your favorite links for dealing with flu when it happens.

a block of nine abstract depictions of disabilities
KosAbility is a Sunday 7 pm eastkost/4 pm leftkost volunteer diarist community of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of "disability" includes temporary as well as permanent health/medical conditions, and small, gnawing problems as well as major, life-threatening ones. Our use of "love someone" extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or generally to everyone, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you are interested in contributing a diary, contact series coordinator postmodernista.

Continue Reading

Thu Jan 22, 2015 at 04:00 AM PST

KosAbility Schedule Update

by postmodernista

We meet Sundays 7pm eastkost time, 4pm leftkost. Kosmail to postmodernista if you're interested in contributing a diary, new OR for republication.  UPCOMING SCHEDULES post between Wednesday & Friday. See our recent & past diaries here & our logobox for more about Sundays. Click on FOLLOW at the top of our page to receive our posts in your stream.

Jan 25 - OPEN THREAD NIGHT & POTLUCK: What Are Your Little Changes That Help A Lot?

February 1 - OPEN THREAD NIGHT & POTLUCK: bring a favorite late winter/early spring easy recipe!

Feb 8 - “Never Again: Coming to Grips with Life After Stroke - Year 1...and 23”
                                                          by Steven Park

Feb 15 - "Gender in Pharmacokinetics; Puberty Ed for Girls Globally; & other Women's Health Topics" (a lot of others) by mettle fatigue

Feb 22 - wilderness voice tentatively scheduled - title/topic TK

March 1 - OPEN THREAD NIGHT & POTLUCK: bring a favorite bad joke!

Mar 8 . . . . . . . . . .
Mar 15 . . . . . . . . .
Mar 22 . . . . . . . . .
March 29 . . . . . . .

Diaries can be 1 paragraph, 2, or 20 — on whatever health-med or related concerns [even distantly related ;-) ] that you, our members & friends, have in mind to talk and write about. Want to upgrade your diary skillz? The New Diarists group is THE place to ask questions, read instructional diaries, learn techniques, and even find coaches/mentors at your own pace.

KosAbility is a Sunday 7 pm eastkost/4 pm leftkost volunteer diarist community of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of "disability" includes temporary as well as permanent health/medical conditions — from small, gnawing problems to major, life-threatening ones. Our use of "love someone" extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or generally to everyone, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you are interested in contributing a diary, contact series coordinator postmodernista.

Discuss

Thu Jan 15, 2015 at 03:00 AM PST

KosAbility Schedule Update

by postmodernista

We meet Sundays 7pm eastkost time, 4pm leftkost. Kosmail to postmodernista if you're interested in contributing a diary, new OR for republication.  UPCOMING SCHEDULES post between Wednesday & Friday. See our recent & past diaries here & our logobox for more about Sundays. Click on FOLLOW at the top of our page to receive our posts in your stream.

Jan 25 - OPEN THREAD NIGHT & POTLUCK: What Are Your Small Changes That Help a Lot?

February 1 - OPEN THREAD NIGHT & POTLUCK: bring a favorite late winter/early spring easy recipe!

Feb 8 - “Never Again: Coming to Grips with Life After Stroke - Year 1...and 23”
                                                          by Steven Park
Feb 15 - "Gender in Pharmacokinetics; Puberty Ed for Girls Globally; & other Women's Health Topics" (a lot of others) by mettle fatigue

Feb 22 . . . . . . . . . . . . . . . . . . . . .your diary here!

March 1 - OPEN THREAD NIGHT & POTLUCK: bring a favorite bad joke!

Mar 8 . . . . . . . . . .
Mar 15 . . . . . . . . .
Mar 22 . . . . . . . . .
March 29 . . . . . . .

Diaries can be 1 paragraph, 2, or 20 — on whatever health-med or related concerns [even distantly related ;-) ] that you, our members & friends, have in mind to talk and write about. Want to upgrade your diary skillz? The New Diarists group is THE place to ask questions, read instructional diaries, learn techniques, and even find coaches/mentors at your own pace.

KosAbility is a Sunday 7 pm eastkost/4 pm leftkost volunteer diarist community of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of "disability" includes temporary as well as permanent health/medical conditions — from small, gnawing problems to major, life-threatening ones. Our use of "love someone" extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or generally to everyone, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you are interested in contributing a diary, contact series coordinator postmodernista.

Discuss

Thu Jan 08, 2015 at 03:00 AM PST

KosAbility: Upcoming Schedule

by postmodernista

We meet Sundays 7pm eastkost time, 4pm leftkost. Kosmail to postmodernista if you're interested in contributing a diary, new OR for republication.  UPCOMING SCHEDULES post between Wednesday & Friday. See our recent & past diaries here & our logobox for more about Sundays. Click on FOLLOW at the top of our page to receive our posts in your stream.


JANUARY 2015 - TENTATIVE OPEN THREAD & POTLUCK MONTH - a.k.a. "winter break"...
we'll still be here, just takin' it easy for a few weeks ;-) This is our fallback position, but if you have a diary to contribute during this time (specifically January 25), please send me a kosmail at your earliest opportunity so that we can get it scheduled.

Jan 11 - working title: aruvedic healing coupled with BigPharma for emotional trauma, by boatsie

Jan 18 - Village Vet and his lovely wife FredFredZ will be our diarists for the evening of January 18, 2015, discussing their experience of living with a new diagnosis of diabetes in their household.

Jan 25 - OPEN THREAD NIGHT & POTLUCK:  bring a favorite surprising medical/health thing you've found out about or that you wonder about.

February 1 - OPEN THREAD NIGHT & POTLUCK: bring a favorite late winter/early spring easy recipe!

Feb 8 - “Never Again: Coming to Grips with Life After Stroke - Year 1...and 23”
                                                          by Steven Park
Feb 15 . . . . . . . . . . . . . . . . . . . . .
Feb 22 . . . . . . . . . . . . . . . . . . . . .

March 1 - OPEN THREAD NIGHT & POTLUCK: bring a favorite bad joke!

Diaries can be 1 paragraph, 2, or 20 — on whatever health-med or related concerns [even distantly related ;-) ] that you, our members & friends, have in mind to talk and write about. Want to upgrade your diary skillz? The New Diarists group is THE place to ask questions, read instructional diaries, learn techniques, and even find coaches/mentors at your own pace.

KosAbility is a Sunday 7 pm eastkost/4 pm leftkost volunteer diarist community of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of "disability" includes temporary as well as permanent health/medical conditions — from small, gnawing problems to major, life-threatening ones. Our use of "love someone" extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or generally to everyone, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you are interested in contributing a diary, contact series coordinator postmodernista.

Discuss

Oh the vanity of New Year's Resolutions, at least for me- the notion that you'll change everything for the better with a simple statement and fortitude. I've done it, and it's a pretty sure bet that almost all of us have at one time or another. I just don't do them anymore, but if you do and you feel like sharing, this is an open space to do so.

a block of nine abstract depictions of disabilities
KosAbility is a Sunday 7 pm eastkost/4 pm leftkost volunteer diarist community of, by & for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of "disability" includes temporary as well as permanent health/medical conditions, and small, gnawing problems as well as major, life-threatening ones. Our use of "love someone" extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or generally to everyone, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you are interested in contributing a diary, contact series coordinator postmodernista.

Continue Reading
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