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View Diary: My Dad and Cancer (88 comments)

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  •  excellent points (14+ / 0-)

    about staying ahead of the pain, and some juice to help wash it down.

    some of the teaching or university hospitals have patient care navigators, and these are nurses who specialize in advocating for patients, and teaching the families to be effective advocates.  a navigator will know if a new therapy becomes available, or suggest equipment that makes going home, even for visits, much easier.  they work very closely with families, too, and offer resources that aren't available or even known about sometimes.

    •  My sister was assigned a palliative care team, (1+ / 0-)
      Recommended by:
      Killer of Sacred Cows

      who visited her at home.  But, with all of her appointments and family visits, it was very irregular.  All the while, the word "hospice" was never used, although in hindsight I see now that's what it was.  But it was not ideal and not the best choice for her family.  She wanted to stay home, but when she finally was taken to the hospital due to a seizure, her family considered hospice.  My other sister fought it tooth and nail, making the decision a very difficult one for the family but in the end my 23 year old niece and brother in law went ahead and made the arrangements, which I supported.  Although she only spent one day there, in a beautiful, almost resort-like setting, it was wonderful and we saw my sister pass away in a peaceful, quiet way.  I highly recommend it and if your father is willing to discuss this at this time, it will prevent alot of distress and heartache for you and your siblings and you can devote your energy to spending time with your Dad.  

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