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View Diary: Advice please (58 comments)

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  •  My dear littlefire, I watched and listened (2+ / 0-)
    Recommended by:
    FloridaSNMOM, Cinnamon

    to the video posted by cinnamon,
    and it supported what I want to say
    on this subject.

    I'm now 57,
    and when I was a small child,
    as far as I know,
    no one,
    at least no one in my world,
    was diagnosing anyone
    with autism spectrum.

    But I feel as if
    I have high functioning autism,
    or aspergers,
    or obsessive compulsive personality disorder,
    or bi-polar,
    or whatever you feel like calling it.

    I've been diagnosed
    with a mild version of bi-polar disorder,
    but I feel these things are all in one package.

    Look at the way I write;
    I'm so stuck on this free verse style,
    I can't write any other way.

    I do this to force my readers
    to pause
    when I want them to pause.

    My point is,
    even though I may be way different
    than your children,
    and all the experts agree,
    get special help,
    special methods of educating them,
    the sooner the better.....

    Yet I've always felt the opposite.

    I've always felt that,
    even though I could not stand
    to miss a day of school;
    I felt left out!
    but mandatory school
    has always seemed like a big mistake.

    Looking back,
    I feel that if someone had given me
    really short articles,
    describing the nature
    and purpose
    of each field of study,
    and then set aside quiet time
    at a library study carol,
    with access to a big library,
    of books and magazines,
    maybe I would have gone far,
    in a few subjects,
    or maybe many.

    I'm smarter than average,
    and I did well enough,
    but I got lazy
    towards the last years of high school.

    I'm trying to reassure you
    that even if the school does nothing different
    for either of your children,
    they might be okay.

    Nothing unusual was done for me,
    back when John Kennedy was shot,
    and I was in third grade.

    And I'm okay.

    Of course,
    I did spend 30 years
    married to a woman
    who was born disabled.

    Many folks might think
    that was retarded
    (I know that's a bad word,
    I'm being cynical,
    fishing for a pat on the back....)
    but I'm okay now.

    My second wife,
    Tonia,
    takes care of me.

    However,
    I still have fits,
    crying for a long time,
    worried about little things.

    I'm still a child.

    But I have a good time,
    in my face to face world,
    and here at Daily Kos.

    So,
    take a deep breath,
    and remember,
    your kids might turn out okay,
    even without any special treatment.

    But libraries,
    and magazines,
    and newspapers,
    and Daily Kos,
    these things truly give folks
    and education.

    Get them into those things,
    as soon as possible.

    Sorry if you think my ideas are worthless,
    since I have no children;
    just thinking of my own childhood.

    •  Far from worthless (0+ / 0-)

      Any time I've met a teen or adult who's had ANY of the diagnoses my daughter has, I ask them for advice - what works, what doesn't, what were later years for them like (the ones that still lay ahead of us). Things like playing sports, driving a car, and taking meds vs. being able to go out pub crawling when they got to college... the best people to learn from are the ones who've lived it.

      Luminous beings are we, not this crude matter. ~ Yoda Political Compass: -8.50, -6.46

      by Cinnamon on Sat Dec 22, 2012 at 05:31:23 AM PST

      [ Parent ]

    •  I second the far from worthless bit (0+ / 0-)

      in fact, even if your comment did nothing else, hearing from adults who navigated the system with diagnoses like my children's it gives me hope. It can be easy to fall into thinking that there isn't any hope, but then I see things that reassure me that it does get better, it does get easier. Parents who walked this same road before me, and their now older teens or grown children are an invaluable resource for ideas, suggestions and hope that it can be done.

      His fire, their mommy. I never wanted to be different, I just wanted to be me.

      by littlefire on Sat Dec 22, 2012 at 08:02:17 AM PST

      [ Parent ]

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