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View Diary: Monday Night Cancer Club: 50 Years of Followups? Young adults w/cancer (62 comments)

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  •  Yeah, there's definitely sucking involved. (9+ / 0-)

    Hope he's getting great care. My 2nd biggest worry was losing my vision, and I'm back to 20/15 in both eyes.

    What he may want to ask about is scar tissue management. For me, that got left by the wayside in all the excitement of the call from the lab. Pain is constant and will persist for the rest of my life...which I'm expecting to be several decades.

    Parent. Entrepreneur. Cancer patient. Moose tracker.

    by PhoenixRising on Mon Dec 31, 2012 at 05:22:43 PM PST

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    •  How helpful to make that suggestion, PR. (8+ / 0-)

      There's so much more I wish I'd known earlier in my treatment and recovery. It's very difficult to get up to speed; never seems like you can get ahead.

      Some DKos series & groups worth your while: Black Kos, Native American Netroots, KosAbility, Monday Night Cancer Club. If you'd like to join the Motor City Kossacks, send me a Kosmail.

      by peregrine kate on Mon Dec 31, 2012 at 05:30:21 PM PST

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    •  I swear they always skip that part, no matter (6+ / 0-)

      where the scar may be.

      I learned about working to prevent scar tissue after a hernia surgery. I learned about it from my chiropractor.

      The scars from my cancer can really impact the movement of my arm. One of the three physical therapists I tried out was a bit irritated with the docs.

      She explained that it's obvious from other scars on my body how I am going to heal and that they should have planned for management to start immediately.

      Well, now I know. As you say, I am the one who  cares the most.

      Tracy B Ann - technically that is my signature.

      by ZenTrainer on Mon Dec 31, 2012 at 06:08:07 PM PST

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      •  So true for paradise50. (4+ / 0-)

        Fortunately he ran into an acquaintance who'd also had massive neck radiation for lymph nodes.  She told him the fibrosis from the radiation would get progressively worse over the next year and would be the hardest part to deal with.  He's now getting rolfing every week to deal with the fibrosis and we work with the scar tissue in his neck and shoulder every night.  But no medical person told us this would be a major issue going forward.

        Talking about how to stop mass shootings in the aftermath of a string of mass shootings isn’t "too soon." It’s much too late.
        ~~ Ezra Klein

        by smileycreek on Mon Dec 31, 2012 at 11:32:32 PM PST

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