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View Diary: Flesh-eating Bacteria for my B-Day and a Colostomy for Christmas. My December to Remember (30 comments)

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  •  Been there, done that with the colostomy. (24+ / 0-)

    Now reversed, thankfully.

    Some advice.  

    First, get an adhesive remover.  It removes the adhesive that adheres to your skin with the wafer that you apply around the stoma.  A must before applying the next one.

    Second, get something to apply to your skin before applying the wafer to prevent any infection or reaction to the wafer.  Rashes in or around this area are painful.

    Third, get the snap-on bag.  I never had a blowout or separation from the wafer using this bag.

    Last.  You are not alone.  It is not as frightening as you might think right now.  

    You will get through this.    

    •  Thanks, you covered it well. The nurses at CH (9+ / 0-)

      went over and did all the steps and tips you mentioned. I appreciateVery reassuring for your list to match that of the nurses. You want to be able to have faith you're being given the best information and these nurses were very thorough. They made it really really hard to leave. And it was because really cared. As genuine as one could ever hope to meet.

      The case worker I spoke with on Fri, who is an attourney who started doing volunteer work and loved it so much he came on as full time staff. His one and only mistake was insisting I try the AA meetings. Other than that he's every bit as amazing at his job as every one else seemed to be. He took the time the day I arrived to get me back to the apt for the first time in a month to check mail, look the apt over, see if Alice was around, which she wasn't at that time so that issue had no closure without my knowing where she was at. Grabbed a few things and back to CH. The man listened, he understood, he delivered. They all did.

      Even most of the patient/residence were really good guys. Around 20 guys, all black except four, two latino guys and an older white guy and myself. The older white guy's eyes seemed to light up when he saw he was no longer the only white guy. An inner warning told me this guy was a racist old fucker and lo and behold, of course he was. I tried to politely avoid him.

      I felt/feel bad for not calling him on his racism, but I was too, I don't know, I'm having a hard time not calling it cowardly, to be confrontational on it. I'd like to think had I had more of a spine I could have at least looked for a private space to tell him respectfully but in clear terms I don't want to hear that shit. I'm fairly sure if my physical/emotional state hadn't been weakened by all this shit that's exactly what I would have done.

      Ds see human suffering and wonder what they can do to relieve it. Rs see human suffering and wonder how they can profit from it.

      by JTinDC on Sun Dec 30, 2012 at 06:33:03 PM PST

      [ Parent ]

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