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View Diary: Louisiana Gov. Jindal cuts hospice care out of Medicaid (209 comments)

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  •  I was a hospice volunteer for many years (2+ / 0-)
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    Quicklund, jedennis

    I usually worked with people in their homes, but occasionally, they were sent to nursing homes when their family could no longer handle their day to day medical needs.

    Without exception, the nursing home stays were more costly (according to family) than in-home hospice care and were much more stressful and difficult for the patient.  Nursing homes in our area may not be as good as where you live and work.  

    They treated the hospice patients I worked with the same as all the other patients in the home. They refused to comply with the terminally ill patients' pain management programs, which are often much different than otherwise healthy nursing home patients.  I'll never forget the moaning, crying and suffering from my terminally ill cancer patients whose pain medication was routinely delayed for hours at a time.  

    After those experiences, I believe dying in hospice care at home is the best alternative, dying as an inpatient in a hospice facility second best,  in a hospital as third best and in a standard nursing home the worst possible.  There's no respect nor understanding of hospice care or pain management and very few people with medical skills on the premises.  

    Democratic Leaders must be very clear they stand with the working class of our country. Democrats must hold the line in demanding that deficit reduction is done fairly -- not on the backs of the elderly, the sick, children and the poor.

    by Betty Pinson on Wed Jan 23, 2013 at 04:07:19 PM PST

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    •  We are lucky. (1+ / 0-)
      Recommended by:
      Quicklund

      We live 1000 miles from my mother-in-law. It has never been an option to have home care. She is 101 years old and had it pretty together until last year when dementia became a huge issue. The place where she is welcomes hospice who reports to us about everything going on in her care. People like my mother-in-law exist on the edge of care alternatives because it is not meds she needs, it is watchful care. She is healthy in many ways but she is definitely on her way out. No one can predict her demise though she gets progressively weaker as time goes on. Hospice is working hand-in-hand with the nursing home to make her gradually diminishing days good. We are grateful to all.

      Force is the midwife of every old society pregnant with a new one. Marx

      by Marihilda on Wed Jan 23, 2013 at 04:35:16 PM PST

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