Skip to main content

View Diary: A little scared tonight.... (76 comments)

Comment Preferences

  •  I truly wish you the best (7+ / 0-)

    and totally understand how difficult it is to have a rare condition that baffles doctors.  I had a rare neuro condition that can only be diagnosis with a MRI, well it was thought rare when I my MRI showed a positive result (of course, if it some rare and some kind of family genetic thing, I always seem to be the magnet for it).  That was twelve years ago.  It was thought that there were few rare cases (like 1 out of 250,000) had this neuro-tube defect which needs surgery to stop the progression of symptoms, and only six neuro doctors in the United States did the surgery.  Today, the number of people who have been diagnosed are as high or higher than MS.  We even have a ribbon and walks now to raise funds.  But, I'll tell you it wasn't easy in the earlier days to deal with doctors.  It happen to be a friend of mine who was a doctor, but from another country who helped me.

    I remember how scared I was at times, it is very scary to deal with symptoms when you don't have a diagnosis.  But, to give you hope, it seems that an answer always comes just as we need it.  I hate panic attacks I had them when I was recovering from brain surgery and they stink.  

    "During times of universal deceit, telling the truth becomes a revolution­ary act. " George Orwell

    by zaka1 on Tue Jan 29, 2013 at 08:50:04 PM PST

Subscribe or Donate to support Daily Kos.

Click here for the mobile view of the site