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View Diary: Monday Night Cancer Club: "The Fix for Cancer Care" (73 comments)

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  •  Thanks for your detailed reply. (5+ / 0-)

    I can see the appeal on paper. And if in practice it produces more patient-centered care, that would certainly be good. That's a shortcoming of cancer care in my experience, and the stories I hear from most people I know who are also dealing with it in one form or another: we're still very much on our own. I can't think of one person I know with cancer who has an advocate or an interpreter of the system and the options that may be available. There's usually very little time included for dialogue or consideration of choices regarding treatment, let alone support for the other aspects of survival that make a big difference.

    Back in the day when I did some (modest) HIV-support work, the innovation was to have case managers be assigned to people to help coordinate care in the multiple dimensions needed. That was a good idea, and it did help people when it was implemented well.

    I'm not saying that most people with cancer need that level of wrap-around support; fortunately, many people with HIV also don't have the level of difficulty to deal with now that used to be common then. But...it would be better if we were closer to that end of the continuum. And I think that's true for anyone with a serious, chronic and/or life-threatening condition. As it is, it's sink or swim.

    Oh, and don't get me started about evidence-based treatment for cancer. One of the most dismaying realizations of this whole process was my comprehension at last that there is NO consensus among oncologists about the best way to treat my particular cancer and stage. That was a wake-up call indeed.

    Some DKos series & groups worth your while: Black Kos, Native American Netroots, KosAbility, Monday Night Cancer Club. If you'd like to join the Motor City Kossacks, send me a Kosmail.

    by peregrine kate on Mon Mar 25, 2013 at 07:56:08 PM PDT

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