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View Diary: Monday Night Cancer Club: What You Want Vs. What You Need (45 comments)

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  •  I'm heading to DC next week (4+ / 0-)
    Recommended by:
    Sara R, peregrine kate, Sylv, corvaire

    to lobby for a good breast cancer agenda - Breast Cancer Deadline 2020.

    Are you with us?

    Breast Cancer Deadline 2020

    Link

    Hint: There's a DKos member in that photo.

    "If you can't take their money, eat their food, drink their booze and then vote against them, you have no business being up there."

    by Betty Pinson on Mon Apr 29, 2013 at 09:46:48 PM PDT

    •  Don't quite get what this means. (3+ / 0-)
      Recommended by:
      Sara R, Sylv, corvaire

      The link didn't make sense to me.

      Are we going to find the cause and cure by 2010? And how is that going to be done?

      Tracy B Ann - technically that is my signature.

      by ZenTrainer on Mon Apr 29, 2013 at 10:09:09 PM PDT

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      •  We're setting a deadline for 2020 (3+ / 0-)
        Recommended by:
        peregrine kate, Sylv, corvaire

        They're looking for answers in 2 areas - real prevention and how to stop metastasis.

        Read up at the web site, its very detailed.  The link at the advocacy page has the 2013 legislative priorities

        PRIORITY #1

        Accelerating the End of Breast Cancer Act: In September 2010, NBCC set a deadline and launched a plan of action to reach its mission: Breast Cancer Deadline 2020® – knowing how to  end breast cancer by January 1, 2020. The "Accelerating the End of Breast Cancer Act," first introduced in the 112th Congress, defines an important role the federal government must play in this effort. The legislation complements and enhances the strategic work being done by NBCC to end breast cancer once and for all.
        PRIORITY #2

        $150 Million for the Department of Defense (DOD) Breast Cancer Research Program (BCRP) for FY2014: As a result of NBCC’s grassroots advocacy, the DOD BCRP was created in 1992 to "eradicate breast cancer by funding innovative, high-impact research through a partnership of scientists and consumers."  NBCC seeks continued funding for this successful program.
        PRIORITY #3

        Guaranteed Access to Quality Care for All: Ensuring access to quality, evidence-based health care has been a top priority of NBCC for many years and is an essential component of the Breast Cancer Deadline 2020® goal of ending breast cancer. NBCC works to identify, advocate for, and support the implementation of laws such as the "Patient Protection and Affordable Care Act" which mark important steps forward in access to quality health care for individuals with, and at risk of, breast cancer. In addition, NBCC remains committed to protecting vital existing programs such as the Medicaid Breast and Cervical Cancer Treatment Program (Medicaid BCCTP) and critically examining any proposed changes to programs such as Medicare in order to determine the impact they would have on this population.
        PRIORITY #4

        Ensuring the Participation of Educated Patient Advocates in all Levels of Health Care Decision Making: NBCC continues to work to ensure that educated patient advocates have a "seat at the table" in all levels of health care decision making which affects their lives.

        link

        "If you can't take their money, eat their food, drink their booze and then vote against them, you have no business being up there."

        by Betty Pinson on Tue Apr 30, 2013 at 07:44:24 AM PDT

        [ Parent ]

        •  Did you read Peggy Orenstein's NYT Magazine (2+ / 0-)
          Recommended by:
          Sylv, corvaire

          article on Sunday? What did you think of it?

          Some DKos series & groups worth your while: Black Kos, Native American Netroots, KosAbility, Monday Night Cancer Club. If you'd like to join the Motor City Kossacks, send me a Kosmail.

          by peregrine kate on Tue Apr 30, 2013 at 07:49:19 AM PDT

          [ Parent ]

          •  Yes, it was pretty good (1+ / 0-)
            Recommended by:
            peregrine kate

            I'm glad she finally accepted scientific evidence and she made good points about so much time being wasted catering to the fears of women who never get breast cancer.  

            She still has a way to go in pushing the boundaries and advocating for better, faster research though.  She did make one small mention about research to understand and stop cancer metastasis.  There needs to be a much bigger push in that direction.  

            It's a shame that it took the revelation of Komen's dishonesty to finally wake up so many breast cancer survivors. We could have used them in the battle years ago, but its better to have them understand some of the issues now.  It will be encouraging to see more attention focused on women who have breast cancer and less on those afraid of getting it and who likely never will.

            "If you can't take their money, eat their food, drink their booze and then vote against them, you have no business being up there."

            by Betty Pinson on Tue Apr 30, 2013 at 01:08:16 PM PDT

            [ Parent ]

        •  How does this compare with other countries who (2+ / 0-)
          Recommended by:
          peregrine kate, alice kleeman

          have much better success rate with cancers? Wouldn't it be cheaper just to adopt some of their treatment options?

          Fro instance my oncologist says that in the US 10 out of 10 oncologists know that chemo doesn't work for breast cancer and yet they prescribe it anyways because it's the standard of care.

          I guess what I am thinking is that a deadline set up by congress is meaningless - a political move.

          Maybe a more useful step would be to adopt the standard of care treatments that others countries use with more success for all cancers?

          Tracy B Ann - technically that is my signature.

          by ZenTrainer on Tue Apr 30, 2013 at 06:09:26 PM PDT

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    •  I'd like to talk with you about advocacy. (3+ / 0-)
      Recommended by:
      Sara R, Sylv, corvaire

      It appears that the gyno cancer "community" is starting to coalesce; there's a meeting planned for early November in DC that I'm hoping to attend. But it would help me be a lot more effective if I knew in advance what to say, what to ask, what to look for.
      I'll look up the particulars and let you know what is on the agenda already.

      Some DKos series & groups worth your while: Black Kos, Native American Netroots, KosAbility, Monday Night Cancer Club. If you'd like to join the Motor City Kossacks, send me a Kosmail.

      by peregrine kate on Tue Apr 30, 2013 at 06:55:32 AM PDT

      [ Parent ]

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