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View Diary: Lessons from the Dementia Diner (88 comments)

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  •  lovely, just lovely (11+ / 0-)
    What makes us all worthy of respect is not our intellects, or our wealth or status, but our humanity
    I have been dealing with my beloved nephew, 43, who had a terrible stroke in February.  He is "locked in" - his intellect and personality is intact, but he is quadriplegic and cannot talk.  

    He was moved to Pittsburgh to a rehabilitation center here and I have been fortunate to be able to visit him 5 to 6 days out of 7.  

    He is a medical doctor himself, and while we all knew he was a good doctor, what I didn't know was how very compassionate he was when he was practicing.  So many tributes have come to him from his former patients about how cared for they felt. Even nurses and orderlies he worked with have stated how respectful he was to all of them.  I don't know how common that is, but I am sure it makes life a lot easier when you feel respected at work.

    and now, in this rehab facility, while it is not perfect, it is still amazing.  The nurses, doctors, pt, ot and speech staff - they are all such blessings.  

    He is regaining a little movement, and so, while his problems are different from the dementia or alzheimer's patients, the lessons you outline are just as wisely given.  

    I also have a brother who is nearing the end with prefrontal lobe dementia, but who lives in North Carolina. I don't have the money for constant travel, so I am unable to visit him as often as I would choose.  It's heartbreaking.

    Thank you so much for your uplifting prose. (((((hugs)))))  

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