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  •  sorry to be coming in on this late, if I'd (5+ / 0-)

    realized you all were talking migraines...

    so, first things first. I've tracked back some but ... Marti, is this the first time you've come up with something migraine-like? or just a new twist in a long history?

    If this is the beginning... well, my DH started getting his in late high school, head literally stuffed with cotton his Jr & Sr years, and then first year of college, bang, pain, and visual artefact so bad he literally couldn't see almost all the time! He had actual pain and migraines almost nonstop for months and months. says what I've read to him so far sounds like what he was going through then. including the Rx roulette trying to find something that would actually work for him.

    What he finally figured out, FYI, because he hated the drugs so much (He was having extreme personality changes from one of the meds, a side effect that seemed to be unique to him; although his mother also experienced it years later when her doctor tried her on the same thing! yoiks, hope that doesn't presage HIM having the same issues she later developed!).

    Anyway, He'd just been hearing about biofeedback in a college psych class and decided it couldn't hurt to try.  He figured out a way by himself, he doesn't remember how; it comes down now to visualizing the blood leaving his head(ache) and going out to his fingertips and feet instead. That's the way he describes it. And this works for him, with no meds.

    He's learned to be very aware of what his signs of "migraine approaching" are, and will immediately go lie down in the dark and do his voodoo, sometimes with a cup of tea, which appears to be the right amount of caffeine for him... It would take him sometimes 5-6 hours to dissolve things, then he'd be "fragile" for up to 48 hours, but no actual migraine or pain. Caffeine dosage is an ART, different for different people. As indeed, migraines are different for different people!

    They were coming about twice a year, but the sidetracking continued successful. They only "try" about once a year or so any more (we've been together 30 years). Yes, atmospheric pressure changes are dangerous, and he says having allergies is a related indicator for many people.

    Good news, though, if weird: He says that since the Type 2 arrived, about 3-4 years ago, he has had only "fizzles" -- the visual and other sensory effects start, but then fall apart before he even gets to the lying down stage! In minutes or literally a second or two, they're just gone!

    Hope any of this may be a help. PS the wacko RX was Gravergol, one of many caffeine/ergot preparations, but that one was a dilly. I said personality change? So extreme it got him fired when he tried it. He says, "I would have fired me for that behavior."

    "real" work : a job where you wash your hands BEFORE you use the bathroom...

    by chimene on Sat Aug 17, 2013 at 03:05:42 PM PDT

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    •  Before this epic mess, I'd only ever had ONE (1+ / 0-)
      Recommended by:
      Kit RMP

      migraine in my life....thirty (very) odd years ago!  According to the doctor who treated me then, it was a "classic" ophthalmic migraine.  It lasted a day or so and that was that.

      Learning from other people's experiences is always a help, so thank you for sharing yours.  :-)

      These headaches came on about a month ago, and this one has been constant for about a week.  We can get it to slack off a bit, but it never goes away....except when I'm asleep.  I suspect it is still there, but being asleep, I just don't give a rat's clavicle!

      There are no triggers I'm aware of, which makes it harder to get a handle on.  I don't have any allergies, either, so there's another culprit out.

      I had an MRI done on Wednesday, and I go to the neurologist this coming Wednesday for the results and, hopefully, some answers.  

      The challenge has been trying to get a handle on the pain, while waiting for a firm diagnosis.  But I can tell you this much.....the loving support of my online framily (friends and family) has kept me semi-sane through this.

      Ice cream doesn't hurt, either, now that I think of it.  And I always think of it!!


      Once we get the pain stopped cold this time, you've given me a few really good ideas for keeping another from taking hold.  Thanks so much for sharing your experiences and ideas... I really appreciate it!


      We cannot call ourselves a civilised society if we refuse to protect the weakest among us.

      by The Marti on Sat Aug 17, 2013 at 07:10:46 PM PDT

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