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View Diary: Coming Out Of The Closet (47 comments)

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  •  My partner (3+ / 0-)
    Recommended by:
    blueoasis, glitterscale, 4Freedom

    has tried amitriptyline and nortriptyline with similar side effects, that usually start after the same time period. We are learning that any "blocker" tends to be a problem. Thus, things he wanted to take for FM, including pregabalin, lyrica, and especially neurontin caused a lot of physical problems. It turns out that the FM (in his case) is most likely caused by immune dysfunction and activated Zoster/possibly other herpes anyway, as his FM went away when a bout of viral meningitis was treated with lots of acyclovir.

    We haven't been able to figure out why the immune dysfunction is occurring. It might be related to ADHD/PTSD, or it might be related to other drugs, such as klonipin (which he no longer takes, for ineffectivity).

    He's been referred to an infectious disease specialist, but once they heard "fibromyalgia" some switch clicked off and they can barely be bothered to schedule a single appointment (they're mostly HIV specialists anyway). I guess I will have to find one who supports the virus idea and isn't necessarily on my insurance. But we will try the non-believers first.

    Misconduct by the government is by definition NOT a government secret.

    by Doug in SF on Fri Jan 03, 2014 at 10:36:55 AM PST

    [ Parent ]

    •  There has been lots of good research (0+ / 0-)

      surrounding FM as virus-linked. Antivirals have been found to help symptoms as varied as GI distress and FM.

      Instead of antibiotics as an antiviral, you might look into olive leaf extract or oil of oregano for long-term use as an antiviral.

      Good luck!

      Journalism is printing what someone else does not want printed. Everything else is public relations. ~ George Orwell

      by 4Freedom on Fri Jan 03, 2014 at 02:20:43 PM PST

      [ Parent ]

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