Skip to main content

First, I want to thank you all for the outpouring of love from this community. I am deeply touched, as I always am, by the caring this community shows to its members.

Today, his twin brother, older brother and sister, nephew, dad and other family members arrived in Portland. We were together most of the day. I have just left the hospital as I need to get some rest, and I encouraged them to settle in to their hotel rooms as well. There is very little we can do tonight.

GMB02's liver has essentially stopped functioning, and they still don't know what is causing it. The team we met with today is enormous, it is excellent, it is busy. He's on dialysis and a ventilator and just about everything else you could imagine. Total life support.

The prognosis is not good. For a variety of reasons which I don't want to go into here he is not a candidate for a liver transplant. If they can get his liver working again it is possible that he will live but his liver function will never be very high. His quality of life will be very low, and there is not really much hope on the part of the doctors that this will happen. The only reason he is alive tonight is because of life support. He is stable, however, and they think there is a good chance that he will make it through the night. Tomorrow, however, we are going to have to start talking seriously about letting him go. It is my decision to make, but I have asked the family to help me make this decision. He has such an awesome family. I am so lucky to have them and I know they love me though some of them I have just met for the first time.

I want to be clear that while they do not know what is causing this, there are some possibilities. Our of respect for his privacy and dignity, all I will say is that while his overall health has been good, he does have a number of health problems and has been on many medications--some of them pretty heavy duty--for many years. Vexing to the doctors and to us is that to look at his liver, it should be functioning. It's not.

There is practically no chance that he is going to come out of this. Please hold us and his family in your thoughts and prayers as we begin to have the kinds of difficult conversations we have been having today. I have a great support network between family, friends, church, and his medical team. For that I am truly grateful. Today my boss basically ordered me to take two weeks off (paid). I didn't argue with her. This is going to be a tough time. I'm going to need you all to help me get through it.

I want to thank Sara R and the quilting team and the many people who have sent such healing, loving vibes, and especially Dave in Northridge who just went through this himself for being especially supportive.

GMB02 at The Rock, which he loved so much, with Geoffrey, whom he loved and groomed and talked: those two could stare into eachother's eyes for an hour and he'd say "I'm learning a lot from what this cat has to tell me".

I will be around in the comments for a while. It's so surreal: I have to start thinking about writing his obituary.

Thu Jan 24, 2013 at 6:14 PM PT: UPDATE: We have left the hospital for the night. He is stable. Bill in Portland Maine, Common Sense Mainer and our other friend Bill came to visit tonight. GMB02 is a little better, in that he is now putting out more fluid than he is taking in though he is still on dialysis. That he is peeing is important. They have been able to turn the ventilator down a bit. There is still not a lot of long term hope, but it is a positive development. I will post another diary after the team rounds in the morning. Thank you to all of you who have sent such loving and healing and kind words, thoughts, prayers and energy.

Originally posted to commonmass on Wed Jan 23, 2013 at 03:59 PM PST.

Also republished by New England Kossacks.

Your Email has been sent.
You must add at least one tag to this diary before publishing it.

Add keywords that describe this diary. Separate multiple keywords with commas.
Tagging tips - Search For Tags - Browse For Tags


More Tagging tips:

A tag is a way to search for this diary. If someone is searching for "Barack Obama," is this a diary they'd be trying to find?

Use a person's full name, without any title. Senator Obama may become President Obama, and Michelle Obama might run for office.

If your diary covers an election or elected official, use election tags, which are generally the state abbreviation followed by the office. CA-01 is the first district House seat. CA-Sen covers both senate races. NY-GOV covers the New York governor's race.

Tags do not compound: that is, "education reform" is a completely different tag from "education". A tag like "reform" alone is probably not meaningful.

Consider if one or more of these tags fits your diary: Civil Rights, Community, Congress, Culture, Economy, Education, Elections, Energy, Environment, Health Care, International, Labor, Law, Media, Meta, National Security, Science, Transportation, or White House. If your diary is specific to a state, consider adding the state (California, Texas, etc). Keep in mind, though, that there are many wonderful and important diaries that don't fit in any of these tags. Don't worry if yours doesn't.

You can add a private note to this diary when hotlisting it:
Are you sure you want to remove this diary from your hotlist?
Are you sure you want to remove your recommendation? You can only recommend a diary once, so you will not be able to re-recommend it afterwards.
Rescue this diary, and add a note:
Are you sure you want to remove this diary from Rescue?
Choose where to republish this diary. The diary will be added to the queue for that group. Publish it from the queue to make it appear.

You must be a member of a group to use this feature.

Add a quick update to your diary without changing the diary itself:
Are you sure you want to remove this diary?
(The diary will be removed from the site and returned to your drafts for further editing.)
(The diary will be removed.)
Are you sure you want to save these changes to the published diary?

Comment Preferences

Meteor Blades, Sharoney, kimo, jbou, Bob Johnson, Caipirinha, Pat K California, Renee, Velocity, JekyllnHyde, shari, Ed in Montana, Angie in WA State, Sylv, Alma, northsylvania, hazey, Bill in Portland Maine, Ray Radlein, filkertom, Common Sense Mainer, Radiowalla, hester, murphy, Timaeus, Maudlin, Gooserock, TrueBlueMajority, Powered Grace, nicolemm, NYmom, lost, PeterHug, greenbird, Emerson, Khun David, alicia, MouseThatRoared, byteb, jazzizbest, Heather in SFBay, LynChi, Wintermute, cotterperson, SanJoseLady, meg, LuvSet, Charles CurtisStanley, VetGrl, Stein, mslat27, celdd, eeff, rubyr, Ed Tracey, willyr, xynz, Sandy on Signal, Richard Cranium, devtob, sobermom, Norwegian Chef, Sandia Blanca, expatjourno, hnichols, davelf2, Heart of the Rockies, dpc, shermanesq, cinnamon68, scribe, TheMomCat, concernedamerican, missLotus, 88kathy, susans, cskendrick, brillig, Wee Mama, whenwego, Ian S, ask, CoolOnion, MillieNeon, Pithy Cherub, Bionic, farmerhunt, chimpy, roses, khloemi, Frederick Clarkson, paulitics, bwren, poe, jalbert, evelette, fumie, kcc, navajo, high uintas, sidnora, aitchdee, wader, revsue, lulusbackintown, Lilyvt, Texknight, SneakySnu, kharma, edrie, Moody Loner, annan, nancelot, MrSandman, sockpuppet, TexDem, NYC Sophia, Dallasdoc, Kamakhya, figbash, pat bunny, wordene, ranger995, MA Liberal, roseeriter, TiaRachel, exiledfromTN, duncanidaho, JimWilson, texasmom, HeyMikey, homo neurotic, 42, QuoVadis, Steven Payne, defluxion10, rockhound, Tillie630, annetteboardman, samoashark, salinas, RenaRF, bsegel, riverlover, 2dot, Lilith, barbwires, dkmich, DMiller, outragedinSF, exlrrp, Diana in NoVa, AllisonInSeattle, zerelda, ybruti, side pocket, Kitsap River, randallt, KayCeSF, DarkSyde, sbg, rickeagle, Irish Patti, boran2, xxdr zombiexx, eyeball, Marc in KS, murrayewv, guyermo, BDA in VA, TexMex, weelzup, Green Mountain Flatlander, sb, vcmvo2, Recovering Southern Baptist, mrmango, ExStr8, historys mysteries, Bluesee, 3goldens, escapee, Auntie Neo Kawn, NoMoreLies, Jeffersonian Democrat, denise b, Ckntfld, UFOH1, blueyedace2, m16eib, JanetT in MD, klamothe, ArchTeryx, chimene, demimondian, sc kitty, Militarytracy, vgranucci, offred, Alice Venturi, labwitchy, one of 8, ccasas, elkhunter, triciawyse, citizenx, basquebob, sandrad23, Tod, Brooke In Seattle, Dobber, Laurence Lewis, Kevskos, ratzo, Annalize5, cfk, Dr Squid, Sun Tzu, Sara R, Inland, GreyHawk, ladybug53, Kayakbiker, Ice Blue, most peculiar mama, blue jersey mom, bjedward, paxpdx, Carnivorous Plantling, Sandino, kaliope, PinHole, Tool, rb608, AnotherMassachusettsLiberal, Blu Gal in DE, Shotput8, Ginny in CO, FindingMyVoice, LivesInAShoe, Lisa Lockwood, churchlady, Pluto, Eileen B, Rogneid, peacestpete, Ekaterin, terjeanderson, kathny, RainyDay, begone, alrdouglas, Born in NOLA, kishik, Jennifer Clare, snazzzybird, BachFan, mcronan, Debbie in ME, Patriot Daily News Clearinghouse, myboo, Clytemnestra, edwardssl, virgomusic, tobendaro, dharmafarmer, emeraldmaiden, BeadLady, tonyahky, mr crabby, rl en france, seefleur, Dvalkure, koNko, TPain, KenBee, deha, mango, Naniboujou, VictorLaszlo, fiddler crabby, luckydog, yojimbo, Lefty Coaster, blueoasis, SherriG, triv33, wild hair, twigg, 4Freedom, gooderservice, SadieSue, katrinka, Tickticker, CTLiberal, bleeding heart, MarciaJ720, tommyfocus2003, ER Doc, middleagedhousewife, MBNYC, llbear, Turbonerd, onionjim, SingerInTheChoir, nother lurker, CA Nana, doingbusinessas, Clive all hat no horse Rodeo, Texdude50, Stripe, WarrenS, cherryXXX69, Dreaming of Better Days, blueoregon, nannyboz, 1864 House, shaharazade, Statusquomustgo, crystal eyes, kurious, nhox42, Friend of the court, 73rd virgin, SeekCa, postmodernista, blueintheface, slksfca, ZenTrainer, Aaa T Tudeattack, NonnyO, cpresley, Thinking Fella, Tamar, One Pissed Off Liberal, old wobbly, Noor B, pgm 01, john07801, marykk, timewarp, BeninSC, pfiore8, asilomar, anotherdemocrat, Cronesense, peagreen, Cat Whisperer, SpecialKinFlag, tgypsy, camlbacker, greytdog, weneedahero, ksp, ninkasi23, bigjacbigjacbigjac, moodyinsavannah, Debs2, LSophia, offgrid, paz3, gloriana, edsbrooklyn, FishOutofWater, DvCM, Mary Mike, la urracca, daveygodigaditch, flumptytail, terabytes, Dave in Northridge, sfbob, Ninepatch, joedemocrat, davehouck, klondike, puzzled, Seneca Doane, artisan, jayden, klnb1019, second gen, martyinsfo, Transactivist, cyncynical, mudslide, mamafooce, jnhobbs, Bronx59, gchaucer2, yella dawg, leonard145b, cloudbustingkid, Azubia, Assaf, the1sage, DGreenCPA, TomP, Empower Ink, chicago minx, gizmo59, JDWolverton, jwinIL14, bkamr, revm3up, mconvente, jack 1966, Scioto, also mom of 5, JeffW, JaxDem, ChocolateChris, Chacounne, mn humanist, MikePhoenix, Marko the Werelynx, ScottyUrb, poligirl, OleHippieChick, mamamedusa, Sixty Something, Youffraita, Senor Unoball, Involuntary Exile, bythesea, smrichmond, skohayes, Laughing Vergil, filby, CDH in Brooklyn, VL Baker, Deep Harm, weddedgay, Calamity Jean, here4tehbeer, Lujane, tofumagoo, royce, Cassandra Waites, pickandshovel, bluesheep, TokenLiberal, Missys Brother, catly, mofembot, temptxan, lotac, Gemina13, glendaw271, petulans, KrazyKitten, matching mole, oak park progressive, sewaneepat, SpamNunn, luckylizard, Tonga 23, Parthenia, emidesu, suesue, binkycat, Quilldriver, sagansong, magicsister, sydneyluv, watercarrier4diogenes, shortgirl, lissablack, jlms qkw, CA coastsider, Purple Priestess, JBL55, oldliberal, legendmn, maggiejean, prettygirlxoxoxo, Ran3dy, MufsMom, zmom, DontTaseMeBro, Old Iowa Liberal, litoralis, greengemini, nchristine, LinSea, not a cent, carolyn urban, dharmasyd, Jahiegel, banjolele, Carol in San Antonio, janmtairy, Fineena, Tara the Antisocial Social Worker, earicicle, GreenMtnState, glitterlust, oxfdblue, bfitzinAR, papahaha, sricki, COwoman, civil wingnut, Munchkn, dalfireplug, CityLightsLover, stevenwag, sfarkash, RoCali, cachola, Little Flower, jfromga, mahakali overdrive, astral66, spicecakes69, chrisblask, schnecke21, Randtntx, citisven, Leftcandid, collardgreens, Vita Brevis, Larsstephens, Words In Action, cassandraX, Railfan, Amber6541, sneakers563, Its the Supreme Court Stupid, parse this, mamamorgaine, rb137, TFinSF, roadbear, dorkenergy, Vacationland, eXtina, stonepier, Susan Grigsby, politik, Observerinvancouver, David Harris Gershon, UTvoter, michelewln, on board 47, eb23, Proud Mom and Grandma, klompendanser, Crabby Abbey, LOrion, mookins, Polly Syllabic, alguien, Simple, freedapeople, JoanMar, gulfgal98, samanthab, pixxer, elginblt, Puddytat, dlemex, ramara, Yasuragi, SoonerG, addisnana, Betty Pinson, orlbucfan, roystah, MsGrin, kenwards, ericlewis0, Otteray Scribe, leu2500, CA Berkeley WV, progdog, txcatlin, farrelad, Actbriniel, verdeo, Mac in Maine, Belle Ame, theKgirls, translatorpro, no way lack of brain, Onomastic, Reetz, annieli, Maximilien Robespierre, yellow cosmic seed, kerflooey, MidwestTreeHugger, ladywithafan, mama jo, Dretutz, zooecium, spooks51, slowbutsure, lady blair, firstalto, jardin32, cv lurking gf, freesia, cooper888, La Gitane, xylonjay, BlueJessamine, BillyElliott, Rick DeVille, FarWestGirl, asterkitty, itzik shpitzik, lexalou, nickinnewyork, Sand Hill Crane, bookgirl, Oregon Gal, cleduc2, GollyMissMolly, lillyspad, sallym, SoCaliana, deeproots, NormAl1792, CoExistNow, Ebby, molunkusmol, mrsgoo, marleycat, Lusty, Lorikeet, susanala, Ricochet67, Cinnamon, thomask, Santa Susanna Kid, dle2GA, Ojibwa, political mutt, muddy boots, smoothnmellow, blw, teloPariah, SueM1121, floridablue, dakinishir, jhb90277, tardis10, MRA NY, worldlotus, wintergreen8694, rexymeteorite, enhydra lutris, Faroutman, Bill in MD, peregrine kate, foresterbob, bluedust, cap76, Crazy Moderate, blue muon, Vatexia, cactusgal, blue aardvark, jolux, Brimi, Miggles, SoCalSal, SteelerGrrl, kareylou, Book of Hearts, zenox, imlpdx, RLMiller, joanbrooker, DRo, googie, Chitown Kev, SouthernLiberalinMD, T100R, caryltoo, Lucy2009, allergywoman, I C Mainer, Nashville fan, DawnN, left over flower child, YaNevaNo, AnnetteK, hulibow, weatherdude, GenXangster, stormicats, Eowyn9, Prairie D, Liberal Granny, MNGlasnant, Heart n Mind, anodnhajo, sow hat, DeadHead, ursoklevar, Williston Barrett, Mindful Nature, Chrislove, Siri, tb92, S F Hippie, surelyujest, AnnieR, a2nite, ProvokingMeaning, FloridaSNMOM, Horace Boothroyd III, xajaxsingerx, Darryl House, Lorinda Pike, This old man, shanesnana, Mr Robert, mapamp, peachcreek, hotheadCA, carolanne, belinda ridgewood, Free Jazz at High Noon, JupiterSurf, BusyinCA, MartyM, pittie70, doroma, OllieGarkey, brae70, snowwoman, tytalus, james321, Noddy, Vote4Obamain2012, avsp, arizonablue, AuntieRa, raina, Glen The Plumber, dotdash2u, OldJackPine, wasatch, Marjmar, Melanie in IA, AZ Sphinx Moth, ShoshannaD, Portlaw, left rev, tn mountain girl, Hammerhand, Most Awesome Nana, Sue B, Lizabet, koseighty, SwedishJewfish, Lily O Lady, DamselleFly, koosah, SchuyH, countwebb, Eric Twocents, jbob, remembrance, JayRaye, glorificus, SanFernandoValleyMom, dear occupant, Agent99, broths, holeworm, weck, Southcoast Luna, Rileycat, Yo Bubba, Robert Helmuth, entrelac, RiveroftheWest, D minor, mindara, basket, howabout, northerntier, GreenMother, Smoh, Avilyn, BadKitties, ApatheticNoMore1966, Hey338Too, Demeter Rising, zakandsantos, Ishmaelbychoice, SC Lib, Knockbally, duhban, northcountry21st, Gardener in PA, palmer18, The Marti, WithHoney, ialonelady, Bon Temps, CA wildwoman, emileen, OldSoldier99

Subscribe or Donate to support Daily Kos.

Click here for the mobile view of the site