Happy Friday! I’m not actually here today, I’m at my pulmonologist appointment and the tests associated with it today. My appointment with the pulmonologist is at 10, but they want me to get the two tests done first, so said it’s ok to be late to that because I’ll be checked in and in the building. If i’m lucky, I may get home around 2pm, if not, it could be dinner time. Bit and I are prepared for both. NaNo Word update: As of this writing, I’ve broken 20,000 out of a goal of 30,000 words, and I’m a couple of days ahead, so if I don’t get any NaNo Writing done today (Friday), it’s no big deal.
As you can see by Itzl's concerned look, this group is for us to check in at to let people know we are alive, doing OK, and not affected by such things as heat, blizzards, floods, wild fires, hurricanes, tornadoes, power outages, or other such things that could keep us off DKos. It's also so we can find other Kossacks nearby for in-person checks when other methods of communication fail - a buddy system. Members come here to check in. If you're not here, or anywhere else on DKos, and there are adverse conditions in your area (floods, heatwaves, hurricanes, etc.), we and your buddy are going to check up on you. If you are going to be away from your computer for a day or a week, let us know here. We care!
IAN is a great group to join, and a good place to learn to write diaries. Drop one of us a PM to be added to the Itzl Alert Network anytime! We all share the publishing duties, and we welcome everyone who reads IAN to write diaries for the group! Every member is an editor, so anyone can take a turn when they have something to say, photos and music to share, a cause to promote or news!
Monday Crimson Quillfeather
Tuesday ejoanna
Wednesday Pam from Calif
Thursday art ah zen
Friday FloridaSNMOM
Saturday Gwennedd
Sunday loggersbrat
It’s been a long week, lots of thunder storms, and very warm temps, which makes my body feel achy and lethargic, which then increases the seizures and twitching. Hopefully I won’t be too bad while out of the house today. I may be completely laid up on Saturday, so if you don’t hear from me, don’t panic (though I will attempt to come on from my tablet at least).
At least I didn’t have to go to get the CT scan done on Wednesday, that was a bonus.
On a bright note, Hulu’s Castle Rock premiers on the 25th. I’ve been looking forward to this since it was announced. It’s set in Stephen King’s universe, but not based on any specific Stephen King book or story, rather it just takes places in the world that he’s built over the past 4 decades or so.
Public school here starts August 13th. My daughter was horrified when she discovered that and said “Please tell me I have more than a month left before we start.” Since we home school, we’re not officially starting the new school year until after Labor day, though she is starting a cooking science course from EdX.org in August. She’s looking forward to that though. I’m hoping to get the gall bladder surgery before we officially start school.
I wanted to be able to get the PT done this summer too, but my insurance denied it. No functional PT for me, at least not right now. What do I need treatment for anyway? I can just go on like this forever, it’s no big deal right? We need universal healthcare. We need a system where people can access treatment for chronic conditions without having to appeal for several years first. I would love to improve enough that I could work at least part time, where I could contribute more. But that’s not going to happen without treatment. It’s already been 8 years, 7 of those without even a diagnosis. The best outcomes for FND occur when treatment starts within 5 years of onset. Every year after that reduces my chances. But you know, why not just postpone it until there’s no point, right? All that matters is that the insurance company saves a few bucks.
Yes sometimes I get depressed and frustrated. I’ve had people tell me that if I could get over it it would all just go away, but I wasn’t depressed until AFTER this all started. They have their symptomology in the wrong order. My FND wasn’t caused by depression, my depression was caused by my FND. My frustration was caused by my FND. Before that, I was getting ready to go to work in my chosen field, and quite happy about it.