When you wake up everyday to help her with therapy, you wake up on weekends at the same time.
The very stylist vest in Space camo inflates and deflates shakes her torso/chest and the lungs inside EVERYDAY at least twice as day. More if she has issues like coughing. CF kids cough because the mucus in the body is thicker and hard to move around. Salt is not being properly processed at the cell level. So it doesn’t do the job of moving germs up and out. Enzymes are blocked from leaving the pancreas. Bowels can obstruct. Meds are nebulized at the same time. It’s a routine we follow like a religion.
We are very excited about Trikafta which is in the trials for her age right now. So we wait. She is on a similar one that is not quite as effective but still very helpful.
It’s available now for 12 and up, with lots of success so far in many people of different mutations.
(The pic is old. Right now this wee one is 6 and getting ready to start to learn how to play Lacrosse at school.)